Archive

Bonnie sadly passed away at 12:30am, 1 August 2023 - she is so missed. Bonnie was an incredible, strong woman. Her urgency to fight for what she believed in shone through every day. Bonnie cared deeply for human rights, for the vulnerable, for the environment and never stopped speaking up for what was in her […]

I had chemo on Tuesday and I think I tolerated it really well. I feel like my liver is going down, I feel well mentally amongst all the other stuff that is going on. I feel good and positive even though I intellectually know that a 17ml dose – yes less than that cough medicine […]

Let’s start with the apology. Time got away, life was going as well as possible, and so I got busy. Things crept up slowly at first and we didn’t recognise all the signs, and by then, I was so fatigued that I didn’t have the capacity to update here. However many of you have been […]

When I last wrote I had achieved ‘no evidence of active disease’ status and was going off treatment to see how long it - this wonderful stage of normalcy - could last. The experiment has been conducted and the conclusions are in, I’m just not too happy with the results. I had the best three […]

Right now, I am very happy. My CT and bone scan results were exactly as I had hoped, and I have achieved no evidence of active disease in my body. That’s a reason to celebrate.

And it is as shitty as I expected.